My name is Vicky. I live in Colorado. I'm 43 and a divorced mother of two. I'm a medical transcriptionist, and a writer. Less than two weeks ago I was diagnosed with colon cancer. I don't smoke, drink, or do drugs, and I don't have a family history of colon cancer. Writing is my way of dealing with and processing what I'm going through. This blog is a way for me to do that for myself, my family, and anyone else who might benefit from it.

Saturday, December 13, 2014

TWO DAYS UNTIL SURGERY!

Saturday, December 13, 2014

Two days before my surgery to remove my colon cancer, or what's left of it.  Here's an update of my symptoms:

1.  That weird vaginal wetness/drainage has stopped.
2.  My fingers are completely back to normal and never crack or peel anymore.
3.  My face has stopped peeling.
4.  My feet and toes are still peeling but not as much now.  I still use the emery board to smooth the top layer, then put on foot cream.  I found a good one I use it a few times a day.  It seems to be working!
4.  The fatigue has lessened and I'm not quite as mentally tired nor clumsy anymore.
5.  The pain is either full on or not there, and comes and goes, but overall it's definitely not as bad as it was before I started chemo and radiation.
6.  My sciatica and foot cramps suddenly cleared up about four days ago.  I just woke up that morning and was back to normal.
7.  The hot flashes (heat waves!) continue, all day, all night.  If I'm already warm, I'll get hotter.  If I move too much, I get hotter.  Being embarrassed can throw me into a hot flash.  Having one of my mental-clogginess and struggling to find my words can throw me into one.  Hot food, spicy food, a racing heartbeat, even turning over in bed.  More and more things are causing me hot flashes.  I seem to now be having hot flashes more often than not having them!  They still wake me several times a night, followed by extreme chills.  Only twice now have I woken up in a sweat.  Glad that doesn't happen with every one of them.
8.  The "vicodin rash", that red itchy spot on my chest, is completely gone.  I knew the cream would work.

On Friday I visited one of the ostomy nurses at the hospital, and she stuck an ostomy bag on my where she thought the best place for my ileostomy would be.  Of course it's in a totally inconvenient spot, but I'm not complaining.  It is what it is.  I'm ok about all of this.

She told me to wear the bag this weekend to become used to it and to see how my clothes fit with it.  It sits right where my waistband goes, so the only real way to wear the bag is to tuck it inside my pants.  But then it rubs on my leg.  So far I'm not used to it, and it's not even in actual use yet!

I've been enjoying eating what I want and when I want it, but today is the last day for that.  It's the middle of the afternoon and I don't plan on eating much of anything the rest of today because tomorrow I have to start the Miralax cleanse for my surgery.

One thing I'm going to miss is salad.  Since moving into Mom's house and using her King Soopers, I discovered her grocery store has a lot more to offer than mine did.  I never did get around to the Chinese food bar, but have enjoyed the olive bar, the soup bar, and the salad bar.  Oh that salad bar!  Yum!  Oh well.

There is only one thing I'm afraid of most of all about surgery in two days.  I'm afraid of coming out of the surgery with a migraine.  I hope that won't happen.  I plan on sipping black coffee or diet soda up until the time I have to stop having anything by mouth the night before surgery.  Surgery is first thing in the morning.  I doubt that when I wake up they'll let me have coffee, but it would be nice if they did!  If they even just let me swish it around in my mouth maybe the caffeine will soak in through my oral mucosa.

And for my final update tonight, the letter from my landlord came.  They actually did deduct the work from my deposit, as I thought they would.  I still don't understand why my landlord stood there telling me they were keeping it.  I guess he just felt like being mean that day.  The letter also claimed that the dishwasher, stove, and freezer were not working and they are therefore charging me $600 for repairs!  Everything was working while I lived there, so it's quite amazing and hard to believe that three major appliances all went kaput the day I moved out.  I won't got into more detail here.  I just thought I'd include it in my updates since I ranted on about it in my last post.

Sunday, December 7, 2014

SUNDAY, DECEMBER 7, 2014

Tomorrow makes it one week until my surgery.  I started having some more strange symptoms yesterday.  First, it started with me having very frequent bowel movements from Friday evening all through Saturday evening.  Normal in every way, just frequent like my body was cleaning me out.  I plan on trying to stay quite empty this week.  No need loading up when I know it'll need to be cleaned out again come next Sunday.

I am not looking forward to doing another round of colon cleansing.  God, I know how starving I'll probably feel when I wake up from my surgery.  I'm almost hoping I'll be in so much pain that I won't even want to eat anything.

Then last night although my sciatica went away, I was still having cramps in my left foot.  Both my legs were very tender to the touch.  I tried massaging it out and doing lunges and stretches, but I'm still so achy.  Could be a little dehydration I suppose.  I'm still trying to remember to drink extra water.

I also had horrible heartburn.

And there's no nice way of saying this.  Gas pains lately have been horrendous.  I could understand if lots of gas was actually coming out but that's not even the case.  Just the pain of it.  It feels like a bowling ball rolling through my intestinal tract!

I forgot to mention on Monday that I got to meet the ostomy nurses at the hospital and even got free samples, all set up by the cancer navigators at the hospital.  I didn't even know we had cancer navigators.  It was all rather serendipitous.  Monday morning Judy, my supervisor, was helping someone lug a bunch of Christmas decorations onto the elevator, and it happened to be someone who works on our floor who is a "cancer navigator".  Judy mentioned me and she gave Judy her card.

So I walked over there Monday to meet them and see what they are all about.  They are there to help you navigate through anything related to your being a cancer patient.  If you need help with scheduling appointments, getting to appointments, understanding things, financial help and whatnot.

Our conversation led to her asking if I wanted to meet the ostomy nurses on the 5th floor who will be caring for me after my surgery.  Sure!  So I got a tour, got to meet and talk with them, pick their brains with all my questions.  They said they never get patients who are so interested and proactive.  I told them it's all I do, sit and think about everything.  The more informed I am, the better I feel.

So that's how I got the ostomy bag samples.  They are a lot cooler than I thought they'd be.  Well, as far as an ostomy bag can be cool.  There will be a ring which sticks to my abdomen and then a bag with an interlocking ring which snaps into place with the other one, ensuring no leaking and no odor.  Good.  Let's hope.  They also are not see-through.  I don't know why anyone would want a see-through ostomy bag.

I've been Googling everything I can about stomas, ostomies, the supplies, how to care for them, what to eat, what not to eat.  The stoma looks really disgusting, like a little creature.  Eeesh!  I am SO GRATEFUL that there are people willing to post photos and videos of their stomas and ostomy bags so that people like me can study how to deal with it and to feel more comfortable about it.  But I don't think I will be one of those people.

Everyone has been saying about my cancer blog that I'm kind of overly detailed and open and very personal about sharing everything I'm going through.  Well heck, I won't blow your mind then with sharing photos and videos of what's coming next week!

Trust me, even I don't want to see it.  And I usually love this kind of stuff.  Maybe I should take a picture of my belly (to keep to myself) so I can remember what my Me looks like now.  Soon there'll be a new Me with a very red creature rearing it's pulsating head out of my tummy.

Think about it....it's your small intestine turned inside out, bulging about an inch out of your abdomen.  If you know me at all, you know I get the major heebie jeebies from all things dismembered or dislocated.  Like contortionists.  I can't stand that.  I can't watch movies like Saw.  Even sword swallowing, tattoos, and body piercings creep me out.  It's just not natural.  Even viral videos of little kids with their first loose tooth getting creatively pulled out just makes me cringe.

There was a horror movie from when my kids were little.  I can't remember the name of it, but this guy could use mental power to detach his hands and then mentally control them to crawl around and break into places or attack women as they slept.  God, I had such nightmares from that.  Abby was just around 2 and unfortunately for her she slept in our bed that night.  In the middle of the night she turned so that the three of us were making an H, with her legs on my legs.

All I know is I suddenly thought something was crawling up my leg.  I reached under the covers and grabbed it, pulled it straight up in the air and yelled, "I got it, I got it!  Kill it before it gets away!"  Yeah, it was bad.  My daughter screamed bloody murder, and rightfully so.  My husband flew out of bed to turn on the lights and yelled, "What in the hell are you doing?" as I stood there on the bed holding our daughter upside down by the ankle.  It was all that stupid horror movie's fault!  I really, really, really get psychologically creeped out by body parts not being in their right place.

To quote Harry's nasty, fat Uncle Vernon, "No post on Sunday!"

SATURDAY, DECEMBER 6, 2014

The prescription anti-itch cream is working great so far.  You can barely see the spot that used to be so red, and it doesn't itch anymore.

The foggy-brain, clumsy, absent-minded list so far:

I once walked into the house and started taking everything off, completely not thinking about it.  Standing there by the front door in my undies about to take off my shirt, with Mom looking at me funny, I realized this wasn't right.  I looked at myself and said, "Oh.  I just took my pants off!"  That was weird.

The day after Thanksgiving Abby and I went Geocaching since the weather was so nice.  After two hours with a success of finding 3 of the 4 we attempted, I just suddenly needed to be done.  Unfortunately we still had at least a half mile walk back to the car.  Finally in the car and sitting at a stop light Abby said, "Mom!  Mom!" and hit my arm.  "The car is rolling."  I had no idea I had taken my foot off the brake.  Good thing no one was in front of us.  I somehow didn't notice the landscape sliding past my window!  I must have really been tired although Abby says I was staring straight ahead.

In the ER with David the other night I was trying to distract myself from the cringing thought of being in a place filled with sick people, some wearing masks, and crying babies, and people walking in with blankets and slippers, like they were so sick all they could do was get up off the couch and walk out the door.  Ick.  The last thing I need right now is to catch God only knows what.  I tried to not even think about it.  I looked over at David clutching his garbage bag of spit-up.  Abby was doing her math homework and plugging equations into her smartphone's calculator.  It gave me a neat idea.

I said, "I have a great idea for an app!  Really, I should invent this.  They should have an app where you can put in any math problem and it figures it out for you."  No, I wasn't trying to be funny.  I was totally serious.  I actually thought I had just come up with the greatest idea ever.

David said, "Yeah that is a great idea except they already have one of those.  It's called a calculator."  Wow.  That was probably the dumbest thing I've ever said.

Today at work I walked straight into a wall.  Well I more like stumbled into it from losing my balance after turning around.  This kind of losing my balance happens a lot lately.

I'm also finding that sometimes I can't get all my words out in a neat and tidy order.  I'm usually pretty well spoken, at least able to speak my mind.  Lately I just feel very unconfident when I'm trying to speak.  I hope all this fuzzy-headed stuff goes away.

Still no letter or pick-up notice.

THURSDAY, DECEMBER 4, 2014

The cramping in my feet started to get worse while sleeping and I woke up this morning with intense sciatic nerve pain in my left calf.  Over the course of the day it spread up to my knee and down into my foot and is very painful when walking.  Touching my skin is excruciating.  Makes my leg feel like it's on fire.

And my feet are now peeling.  I've always gotten dry skin sometimes but this is not normal, definitely due to the chemo.  When I get out of the shower is when the skin peels the most.  I'll be toweling off my feet and the skin just rubs right off.  That's gross sounding, I know, but that's what it does.

I don't feel a thing when it happens.  I just rub it off until it's done peeling and then that's it.  Later in the day if I check my feet they might show a little peeling but it's rougher and dryer, so for it to come off I'd have to pull at it, snip it with clippers, or shave it down with an emery board.  Still no feeling at all.  Definitely a reaction to my therapy.

My face peels too but thank God not to that degree.  It's like when you've had a sunburn and your skin is lightly peeling and flaking.  I use Oil of Ole beauty cream or whatever it's called.  Put it on a couple times a day and you can't even tell.  I just keep checking the mirror periodically to make sure there's no flakes of skin showing.

Still no letter or pick-up notice.

WEDNESDAY, DECEMBER 3, 2014

I've been having feet cramps a lot the last few days.  I haven't done anything in particular, so this came out of nowhere.

I picked up the prescription anti-itch cream.

I also made a surprise visit to my landlord's house.  Even though he's got a new tenant not all is finished.  He's supposed to let me know how much of my deposit I get back.  Said I'd have it no later than December 2.  But they've been ignoring my emails so I just showed up.

He acted like he had no idea why I would be ringing his doorbell.  When I asked about my deposit he said they sent a certified letter.  When I said I hadn't gotten anything and it's now past the 2nd, he said it was because they didn't know my address so they put the rental house address on it and that it had come back to them and they had to sent it back out.  (So what made them think it would work a second time if it didn't the first??) I could tell he was lying.  When I asked what I was getting back he acted like he didn't know anything about my deposit because his wife handles all that stuff.  Really?  I'm supposed to believe that they never talk about anything?

Then, despite his supposedly not knowing anything about it, as an afterthought and no very nicely he said that I forfeited my deposit by breaking my lease and that I wasn't getting anything back.  Whoa, I wasn't expecting that kind of reaction.  For one thing, I asked permission to get out of my lease and he agreed to it.  Plus, I have it in email where they said they would deduct necessary yard work and house cleaning costs from my deposit and then get the rest back to me as soon as they could "no later than December 2".  (Backpay for the water bill was to be deducted from it as well, which pretty much wipes out my entire deposit.  But that's ok, I was expecting that).

What's not ok is for him to tell me that instead of deducting it, they're going to just bill me for the work and the water bill!  He kept saying, "It's in your contract.  Read it.  Read my letter, and if you have any questions after that, call me."  Wait a sec, I thought he said he didn't know anything about any of this?  (He did.  I'm being facetious).  This is exactly why I just showed up at his door without calling.  I knew something was up.

As far as I'm concerned, that contract is now expired because of the changes we agreed to and because he's got a new tenant.  And besides, I pointed out to him that all this time, from September when I asked if he would let me out of my lease (and he said yes) until now, they said nothing about keeping the deposit but instead led me to believe we were all on the same page.

I asked him why they would purposely mislead me, literally lie to me, and he actually said, "The reason we didn't say anything was because we didn't want a confrontation."  Wow.  I'm assuming they meant that they were the ones who would be confrontational because I'm not, nor should they have reason to expect me to be.  All I did was ask a question, "Will you let me out of my lease?" Later followed by, "Can those costs be deducted from my deposit?"  As far as I'm concerned, their emails agreeing to these things overrides the rental agreement.  Being in agreement to break the lease is on both our parts.  It's what got the ball rolling.  They can't lie to me, then have me go through the move, even helping them advertise, interview tenants, and show the house, then after the fact say they didn't really agree to anything.  That's ridiculous.

And if they really want to stick to the rental agreement, then they would see that they were supposed to tally the water bill overcharges at the end of each lease each year and have me pay it then.  They didn't.  They also were supposed to get the receipts of work done along with the refund on my deposit, if any, within 45 days of my giving them the keys.  They didn't.

He also lied about having sent a letter out to me already, saying they had no idea what my new address was so they put the rental house address on it, and that it had been returned to them, and they had to mail it out again.  Why would you knowingly put the wrong address on something instead of calling, texting, or emailing for the correct address?  That makes no sense at all.  Besides, it would have gotten forwarded like all my other mail.  I even called the post office and they said mail is forwarded for up to 12 months.  

We've had a very friendly relationship the entire 6 years I've rented from them, so why on earth wouldn't they just call, text, or email me for my new address?  There's no excuse for that, other than they didn't have all their ducks in a row and didn't get everything prepared on time, and felt like they had to lie about it.  That, and they're mad they had to come up with money to pay for the work.  I have a feeling my deposit was not just sitting in the bank the past 6 years.  They probably didn't actually have my money to deduct anything from!

When it comes I'll check the sender's slip to see when it was sent.  And it'll be interesting to see what his letter actually says.  I have a feeling he was just upset and wanted to blow up at me.  Hopefully he didn't actually keep the money and is billing me too.

I haven't done anything wrong.  A conversation is a just that, a conversation.  He agreed to let me out of my lease.  I didn't hold a gun to his head.  That means we made changes to the original rental contract.  So why lie to avoid confrontation?  If we have a mutual agreement then there is nothing for anyone to get confrontational about.  At least not on my end.  But then again, I'm not the one who lied.  You can't pretend to go along with something and then turn around and say you didn't really mean it because you were just too afraid to say anything.  Unbelievable.

I played this prank on my supervisor.  We joke around a lot and the #1 rule of thumb is, if you get up and walk away, your cubical is fair game.  Over the years I've taped all her file drawers shut.  Taped everything on the top of her desk to her desk.  Switched her calendar out for an old one.  Stuck googly eyes on everything in her cubical.  Hidden her chair.  Chained all the paperclips in her paperclip cup together.  I can't tell you how many times I've set her clock back, or forward.  I've even resorted to the whoopee cushion.  I'm nearly running out of ideas but managed to come up with this one while working on a do's and don'ts list for what I can eat after my surgery.

Trust me, she's gotten me back plenty, and has made lots of jokes about the bag I'm going to be wearing after my surgery.  She deserves this one :)

TUESDAY, DECEMBER 2, 2014

Off work today so I could go to a couple appointments.  First, I had to drive David to Boulder's Fiske Planetarium for his astronomy class field trip.  He was nervous about driving himself that far in his new car so I was going to drive him today anyway, but since he spent half the night in the ER and was out on propofol getting endoscoped, I definitely needed to drive him anyway!  Good thing too because after I picked him up he wasn't feeling well and didn't feel like going back to school.

My first appointment was a follow up with Dr. Kemmis, my radiation oncologist.  I went over my list of symptoms and everything I had to mention was normal.  The vaginal drainage is lessening and most of the time there is none, but it's still normal.  The radiation and changes to my hormones affect the vaginal flora and cause this reaction, he said.  The hot flashes, normal.  He said again that at my age he believes this will be a permanent menopause for me.

Being foggy-brained, losing my balance, and not knowing what I'm doing sometimes....all normal, but probably mostly caused by lack of sleep because those darn hot flashes wake me more times a night than my newborn babies ever did!

The increase in pain?  Still normal.  I don't have pain most days but it just comes on sometimes, probably when I do too much walking.  I asked him if it's possible the tumor was growing or the cancer spreading, but he said not likely.

So it was a relief to hear everything's normal.  The nurse even told me that they wish they saw more patients like me.  Most people have so many more side effects and complaints and really do not handle it well at all.  I asked her if she meant patients with exactly my same type of cancer, stage, and treatment, and she said yes!

After that appointment I had to hurry to my next one, my primary doc, so that I could get surgical clearance.  I got an EKG, chest x-rays, urine sample, and then sent back to the hospital for blood work.  She also gave me a prescription for an anti-itch cream for a skin reaction I've had for a couple years.  My belief is it's an allergic reaction to Vicodin.  If the cream doesn't work she'll send me to a dermatologist and maybe get a biopsy.  I'm pretty sure the cream will work.  For years now whenever I take Vicodin my entire body itches.  But there's one spot on my chest that is the worst.  When I scratch it too much I get this red, dry spot.

Ever read that sheet of directions, indications, and sides effects you get when you pick up a prescription?  I do, but then again I read everything.  The first thing on the side effects list is "itching".  Yep.  The cream I'm taking for my extreme case of itching may cause itching.

MONDAY, DECEMBER 1, 2014

Tonight during dinner my son, David, got a piece of meat stuck in his esophagus where he had his surgery as a baby.  He was born with a tracheoesophageal fistula with esophageal atresia.  All those fancy long words simply mean his esophagus was not fully formed but ended in a pouch mid-chest, while the rest of the esophagus grew up from the stomach and attached itself to his trachea.  Every once in a while food gets stuck there because there's none of the normal peristalsing muscle to help move food along and scar tissue can build up and cause narrowing.

So we spent the evening in the ER, got home around 12:30 am.  Biopsies have confirmed he has Eosinophilic Esophagitis.  It can be abbreviated as EE or EoE.  We'll have to have him allergy tested to see if we can identify specific triggers, but for now we were told certain foods and medications cause narrowing of the esophagus.  I had no idea.  I always assumed his problems were caused from his surgery.

David and I have always had major medical conditions happening close to the same time.  He was born by C-section with his birth defect, and 8 months later I found out I had a tumor in my lungs which nearly made me drown in my own blood.  Then a couple years ago I needed wrist surgery, and a week later we found out David had a pilonidal cyst which required surgery.  Then in September I was diagnosed with cancer and now David has this EE.

TUESDAY, NOVEMBER 25, 2014

David bought himself a new car tonight!  I'm so proud of him and also very thankful he can drive himself around now.